A quick word.

I am a writer. As part of my commitment to writing, I participate in Script Frenzy and NaNoWriMo each year. Please consider donating to support the programs the Office of Letters and Light run!

One really easy way to do that is to use GoodSearch. Each search raises money for the charity you specify!

Another way is to sponsor me. :)

For NaNoWriMo, I write Young Adult novels about teens with disabilities. This year, I'm writing the third book in a series.

The Möbius Strip is about youth with disabilities who attend an alternative school in Calgary, Alberta.

Tumbling is about Talia, a 14yo autistic girl with tardive dyskinesia (a result of the antipsychotics her mother had her take for several years). She wants to be a competitive gymnast. She also has to testify in the trial of the man who sexually abused her. Tumbling was the novel I wrote for NaNoWriMo in 2008.

Relevé takes place two years after Tumbling. Shortly after her 16th birthday, Rosemarie's boyfriend dumps her. Then she fails her audition for the ballet corps she has wanted to be a part of for years. After nearly destroying her friendship with Talia, Rosemarie re-evaluates her life and dreams, finding new strength and self-understanding. Relevé is a complete rewrite of the novel I wrote for NaNoWriMo in 2006.

Pointillism follows Relevé. Tim is 17 and has unmedicated ADHD. He desperately wants to attend the Alberta College of Art & Design (ACAD) next year, but is having a horrible time getting his portfolio and application finished. He is Rosemarie's former boyfriend, and still has feelings for her. Pointillism is the novel I will be writing for NaNoWriMo in 2009.

This is not a blog entry, so you can't leave comments to it. I will be making a post about NaNoWriMo eventually and will link to it from here. Thank you!

Friday, July 10, 2009

Respect, dignity, and rights.

re⋅spect /rɪˈspɛkt/ [ri-spekt]
–verb (used with object)
  1. to hold in esteem or honor: I cannot respect a cheat.
  2. to show regard or consideration for: to respect someone's rights.
  3. to refrain from intruding upon or interfering with: to respect a person's privacy.
  4. to relate or have reference to.
(courtesy of Dictionary.com)
dig⋅ni⋅ty /ˈdɪgnɪti/ [dig-ni-tee]
–noun, plural -ties.
  1. bearing, conduct, or speech indicative of self-respect or appreciation of the formality or gravity of an occasion or situation.
  2. nobility or elevation of character; worthiness: dignity of sentiments.
  3. elevated rank, office, station, etc.
  4. relative standing; rank.
  5. a sign or token of respect: an impertinent question unworthy of the dignity of an answer.
(courtesy of Dictionary.com)
right /raɪt/ [rahyt]
–noun
  1. a just claim or title, whether legal, prescriptive, or moral: You have a right to say what you please.
  2. Sometimes, rights. that which is due to anyone by just claim, legal guarantees, moral principles, etc.: women's rights; Freedom of speech is a right of all Americans.
  3. adherence or obedience to moral and legal principles and authority.
  4. that which is morally, legally, or ethically proper: to know right from wrong.
  5. a moral, ethical, or legal principle considered as an underlying cause of truth, justice, morality, or ethics.
(courtesy of Dictionary.com)

In the comments to this post, I found several references to all those poor autistic adults who are stuck in institutions because they weren't given ABA and never recovered, so they simply are incapable of higher-level cognition or any form of independence and need to have their lives dictated by non-autistic people, who of course know better than the autistic people what is best.

Many people have written elsewhere about institutions, and these people have personal experience with them, so I won't address that specifically (I would link to those posts, but can't find them right now; please feel free to share in the comments). What this post is about is the attitude of non-disabled people toward individuals with disabilities.

Basically, the attitude can be boiled down to "I'm worth more than someone who has a disability, because I am not disabled." This lack of respect for others leads to the removal of dignity and the stripping of rights of individuals with disabilities.

Let's be clear here: a person is worthwhile because he or she is a person and is alive. I don't care if the person can't communicate anything more than basic emotions and is unable to perform any personal care tasks (e.g., A, who I wrote about here), is able to speak in complete sentences but has mobility difficulties (e.g., J, who I wrote about here), or is able to pass as completely non-disabled in their everyday life and is able to perform most necessary day-to-day tasks without support (e.g., my friend DJ, who blogs here). There is a certain intrinsic worth to every human life, and we stand to learn something from everybody, no matter their cognitive abilities.

All people are capable of some level of understanding. Organizations that provide services to individuals with disabilities often create "plain language" versions of their literature, to give individuals with cognitive delays (or even English as a second language) a better chance at understanding it. Some organizations I know of in Alberta have gone so far as to help the individuals they serve create videos that make processes clearer for everyone. (Please note: these video projects are done at the behest of the individuals receiving service, so nobody is being exploited.)

Respecting a person means preserving their dignity and enforcing their rights. It means understanding that their opinions about things might be different. It means allowing them to speak out, even if what they say is disturbing on some level. It means granting privacy. These principles are important for everyone, by the way, not just individuals with disabilities. We need to learn to respect everyone in our lives.

Arguing for respect does not deny the difficulties many people face as a result of their disabilities. I would say that A, the woman I mentioned earlier, is the most severely disabled person I have ever met. Yet she lives as full a life as possible, in her mother's home. She has friends as well as staff, and I got to see video of her birthday party the day I met her family. She couldn't open her presents, but a niece did so for her, and she smiled throughout the process - an indication that she understood that these things were for her, and that she liked them. Indeed, clothing was obviously chosen with care and attention to things like A's favourite colour and what is popular right now for young women in their twenties. A will probably never be able to say words, and she will probably never type blog posts. But she is cared for and about, and her needs and desires are considered carefully by those around her. That is respect.

There is more I would like to say here, but this will suffice for now; my own disability is causing my writing to become more disjointed than I would like. Eventually I will find the words and put them up for all to see.
This post's icon was created by the author.

News

  • 21.10.09 :: It's that time again - I'm doing NaNoWriMo! This year my novel is about a 17yo ADHDer who is off meds and applying to art college.
  • 24.06.2009 :: Please check out my new e-zine and see if you might be able to volunteer or contribute something!
  • 13.01.2009 :: I am currently working on revamping the design/look/feel of the blog. It's nowhere near as good as I'd like it to be, but this is what I'm stuck with for now...

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